Archive for April, 2006

Identification talk

Portugal, where I am visiting, does not have a formal category of special education for students with Learning Disabilities. However, there are people here who are very concerned about these students. They asked that I talk with classes here about LD as well as present a discussion of identification issues during an up-coming conference.

Here’s a simplified outline of my comments in a class 21 April:

  1. Historical perspective on identification
  2. Reasons for identifying students who need help.
  3. Identification is affected by definition
  4. Identification can be based on on exclusion of other problems, discrepancy (conceptual or psychometric), or results of teaching
  5. Assessment data are critical in making identifications
    1. Types of assessment data include those used for identification, program planning, and progress monitoring
    2. Assessment data must be trustworthy (reliability and validity)
  6. Assessment for identification
    1. Fundamental Question: Whether individuals are different enough to merit special treatment?
    2. Predicated on “norms”
      1. Raises questions about what counts as normal, where we establish cut points.
      2. Examples include visual impairment and mental retardation
  7. Methods of identifing LD
    1. ID by exclusion (what LD is not)
    2. ID by discrepancy (conceptual versus psychometric)
    3. ID by teaching
  8. RtI and LD
    1. Early years approach
    2. Problem-solving model
    3. Common elements are
      1. Evidence-based practice
      2. Monitoring of progress.
  9. What are agreed-upon aspects of LD for identification
    1. Low achievement
    2. Not explained by MR, sensory problems, or EBD
    3. Not corrected by providing adequate instruction

Away again

Pat Lloyd and I are abroad again, but this time it’s not to the East. It’s Portugal and surrounds.

We’re spending most of our time in Braga, which is in the northeast. Although it is a lovely city with a rich history for Portugal, Catholicism, and the ebb and flow of political tides in Europe, we actually have business in Braga. Thanks to a grant from the J. William Fulbright Foreign Scholarship Board, the Bureau of Education and Cultural Affairs of the US Department of State, and the Council for International Exchange of Scholars, I am teaching at the University du Minho and collaborating with faculty members on potential scholarly activities.

Thanks to the efforts of Luis de Miranda Correira and Ana Paula Martins, faculty members at Minho, I have had the chance to met a class of masters students on Friday the 21st; from 1400-2200, I described US approaches to identification of students with Learning Disabilities (with a substantial side-trip through basic assessment methods). The members of the group, most of whom are practicing teachers, were attentive and responsive. They are eager to know about both the practical side of identification as well as the controversies surrounding such topics as response to intervention.

Thanks friend

Entertainer Bill Cosby showed his advocacy competence in a speech delivered to college students and others concerned with Learning Disabilities. According to a story by Mary Ellen Lowney published Saturday 15 April 2006, Mr. Cosby encouraged students with dyslexia and other learning disabilities to learn to advocate for themselves.

In a packed Student Union ballroom at the University of Massachusetts, the 68-year-old Shelburne resident spoke of his own son, the late Ennis Cosby, and his academic struggles leading up to his diagnosis as one of the approximate 12 million dyslexics in the United States.

“One of the best moments was when Ennis came back from his testing and said, ‘I’m dyslexic.’ My wife and I went ‘Thank God’ because we knew we could work from there,” said Cosby.

Kudos to Mr. Cosby for continuing to speak openly and honestly about Learning Disabilities.

Link to Ms. Lowney’s story. Read other coverage of the event by U. Mass’ news office. Note: Hello Friend is a foundation established by Bill Cosby and his family to honor the memory of Ennis Cosby, an individual with Learning Disabilities who met an untimely death in 1999. Visit Hello Friend.

Medication issues

The current issue of the Newsbriefs from the Center for Development and Learning (CDL) has a segment that will be of interest to teachers and parents of students who take medication for attention disorders or for whom medication is a possibility, as well as others who have interest in the topic. The CDL is a not-for-profit organization that promotes some worthwhile educational practices and concepts. I couldn’t find a copy of the newsbrief on the CDL Web site, so I’m taking the unusual step of posting the article in its entirety here.

Medication Issues for Children with ADHD: 3 Strategic Concerns
By Gerard A. Ballanco, M.D., FAAP
Sub-board certified in Developmental and Behavioral Pediatrics

April 13, 2006
The use of medication to treat symptoms associated with Attention-Deficit Disorders is often controversial. Parents and educators frequently express concerns that taking medications will lead to teenage alcohol and drug abuse. Many times parents may be hesitant to inform school personnel about medication use because they are afraid the label of ADD or ADHD will stigmatize their child. Additionally, they express concern about medications “controlling” their child’s behavior instead of the child developing self-control. This publication will address these concerns.

1. Does stimulant medication used to help a child with attention deficits lead to drug abuse?
Evidence is accumulating that patients with ADHD who take stimulant medication during childhood actually have a risk of drug abuse that is no higher than the general population and significantly less than untreated individuals who have ADHD. Individuals with ADHD have a higher lifetime incidence of illegal drug use, alcoholism, smoking and risk-taking behavior than do matched peers who do not have this diagnosis. This is especially true of individuals who show significant defiant or aggressive behavior. People with ADHD do not abuse the stimulant medications; they use and abuse other drugs. This observation makes sense since oral stimulant medication does not cause a “high.” It simply helps the person to focus better.

2. Does labeling a child as one who has attention difficulties and/or who is taking medication to manage his attention difficulties adversely affect how teachers treat him or her?
Labeling is an issue that generates different opinions. Should we say a child has ADHD or describe a person as inattentive, impulsive, and overactive? Should we use friendlier and more descriptive words such as: the person is inconsistent and has inconsistent mental energy to bring to task; he often fails to process information deeply enough to consider all of its important points; she fails to make transitions easily; he is too active in situations in which he is expected to remain still? How should school administration, policy and legislation deal with the myriad of possible descriptors of children with attention problems without a label to put them under? How should a parent or attorney demand that a child’s needs be addressed? How do we minimize the possibility that the label will negatively stereotype a child?
The obvious answer is to incorporate the useful elements of both labels and descriptors. We must keep insisting that descriptors accompany labels. For example, if clinicians provide a diagnostic label such as ADHD, they should also describe how the disorder affects the child’s day-to-day functioning, such as, he does not complete his classwork in a timely manner or he gets distracted when given an instruction and does not follow through. The latter suggests behaviors that need to be modified; whereas, the label of ADHD does not. Eventually, the community of individuals working directly with the child (parents, teachers, tutors, the child him/herself) will come to recognize that the descriptors are much more important and useful than the label. Some families are delighted to have a label or name for the nemesis that has plagued them; others find a label odious. Both are common reactions.
Federal law prohibits discrimination against individuals with disabilities. An individual with a significant attention deficit may be in this category. Schools, including universities, accept students with attention deficits and may have programs for students with special learning needs as well. Schools that accept federal funds may not deny admission on the basis of attention deficits or learning disorders, and they must make accommodations for the disability. In this circumstance, the diagnostic label makes an increased level of services or accommodations available to the individual.

3. Does taking medication for the treatment of ADHD deny the child the opportunity to develop a sense of responsibility?
Each person develops a sense of responsibility at his or her own pace. It comes from using and applying internalized values and the experiences that we encounter throughout life. The outcomes of this bank of experiences are compared to our internalized values, and we get a sense of self-esteem and, hopefully, confidence. We accept the responsibility of our actions and accept consequences for them, but only if we have a sense of control and think that we have a reasonable chance of success. A critical element of the development of a sense of responsibility is previewing - the ability to reflect on what we do before we do it, compare the plan to past actions in similar circumstances, and anticipate the possible outcomes before acting. People with attention deficits who are impulsive, distracted, or moving too fast may not think before they act, so they often end up with results they neither wanted nor expected.
Thus, a person with attention deficits seems to develop a sense of responsibility more slowly than his/her peers. Mistakes are inadvertently repeated, much more so than usual, as the person learns how to live with and use an inattentive brain. Spouses and secretaries are accepted supports in the adult world, but are not usually available to young students. Parents, of course, may offer to help their children who have ADHD, but their efforts may be met with resistance, especially from teenagers.
Medication appears to temporarily accelerate an individual’s sense of responsibility when it is active, but when it wears off, old ways return. Taking medication does not slow the development of the sense of responsibility, but it doesn’t speed it up too much either. It often helps the child or adult to experience a higher degree of success, which makes effort more rewarding and more likely to be repeated. It is important to explicitly state to children and adolescents that having an attention deficit does not excuse them from responsibility for doing or not doing something. The consequence or reward of a behavior should depend on the nature of the behavior rather than whether it was voluntarily or involuntarily performed.

Dr. Ballanco, MD, FAAP, serves on the CDL Community Advisory Council and formerly served as chairman of the CDL Board of Trustees. In 2004, Dr. Ballanco was listed in New Orleans City Business as one of the top 20 pediatricians in the Greater New Orleans area. He presently practices developmental pediatrics in Mandeville, Louisiana.

Link to the CDL Web site.

Accomplished people who happen to have Learning Disabilities

Many individuals who have Learning Disabilities have risen to high levels of achievement. In a strong article for the Chicago Tribune, Kath Bergen tells the tale of several people who, though they may not be the news headliners often featured in such articles, have achieved very well in their work. Here’s Mr. Bergen’s lead:

Soft-spoken and conservatively dressed, Bill Jacobs owns eight car dealerships that did $400 million in sales last year. As a child, he couldn’t swim freestyle or tie his shoes.

Chicago economist Diane Swonk, blessed with chiseled cheekbones and an ultraquick mind, is a TV darling, appearing 105 times in the past year. As a student, multiple-choice tests gave her headaches and blurred her vision. “It looked like the letters were dancing on the page,” she recalled.

Restaurateur Jerry Kleiner, who has an uncanny knack for spotting the next hot neighborhood, recently opened his latest chic eatery, Carnivale, to rave reviews. But as a high school student, he said, “I was lost. I was really lost. If someone had said, `Do your homework or you’ll be shot and killed,’ I still couldn’t have done it.”

Over time Kleiner found his path, as did Swonk and Jacobs and countless other high-profile business people who have learning disabilities, whether attention-deficit (hyperactivity) disorder, dyslexia, some elements of each, or other learning differences.

Ms. Bergen does not depend solely on these cases to illustrate the fact that individuals with LD can accomplish great things. She refers to people in not-so-renowned areas; understandably, many come from the the world of business because Ms. Bergin’s beat is business, but also she draws examples from other disciplines such as the ministry and journalism. Although some of the cases that Ms. Bergin uses are based on potentially inaccurrate self-diagnoses, there are enough cases (and good comments Sally Shaywitz) to make a strong argument for the potential of many individuals with LD to contribute to our society in valuable ways.

It’s articles such as this one that can be used beneficially to encourage students with disabilities. To be sure, high-profile high achievers with LD deservce recognition and can serve as role models. That there are many individuals with LD who have achieved well but who do not have the celebrity of, say, Greg Louganis offers a compelling illustration the benefits of persistence and making good use of the skills, abilities, and knowledge one has.

Link to Ms. Bergin’s article. Links to previous posts in this series: a golfer, Sir Jack Stewart, a pre-med student….

Thanks to Janet Lerner for the tip.

Reviewers needed

I am responsible for overseeing reviews of proposals related to Learning Disabilities for the 2007 conference of the Council for Exceptional Children. Proposed papers for the conference will be submitted in the next few weeks. Reviews will be conducted during the summer. Reviewers need to have expertise in LD; it is especially helpful if they also have expertise in at least one of the following topics.

  • Reading instruction;
  • Mathematics instruction;
  • Content area (e.g., science) instruction.

If any readers are interested in serving as a reviewer, please let me know. Leave a comment here or, better yet, write to me at JohnL aaaaat Virginia.edu. To learn more about the conference, download a PSDF from CEC’s site.